Ethan was diagnosed with Truncus Arteriosis with an
Interrupted Aortic Arch at 20 weeks gestation. His
due date was October 24th. He was originally diagnosed
at the Sacramento Maternal Fetal Center by Dr. Hans
Hesslein and further confirmed by Dr. Stanley Wright
at Sacramento Heart.
We were referred to Lucile Packard
Children's Hospital at Stanford as Ethan would need
heart surgery shortly after birth. After Stanford
confirmed Ethan's heart defect, we scheduled a date
for us to give birth. Since Ethan was sitting breach
and not showing much growth, we set a date for October
6th. Ethan would be born caesarian.
It's not unusual that babies with
heart defects lack the size of a healthy baby. According
to Ethan's measurements in utero, he would be born
a little more than 4 pounds.
Heather's c-section was scheduled
for 10am October 6th. However, there were other emergency
surgeries that day and we were pushed back to Wednesday
morning(October 8th). We were set to stay the next
couple nights at Stanford until Ethan's birth. On
the night of October 6th, Ethan's heart rate dropped
extremely low on more than one occasion and Heather
was having contractions due to dehydration. This prompted
the c-section for the morning of October 7th.
Ethan was born on October 7th at 12:36pm.
He was 4 pounds 8 ounces and 17 inches long. I was
able to watch the surgeons pull Ethan from the incision
below Heather's naval. Heather and I were waiting
for Ethan's first cry and it seemed like an eternity.
After about a full minute, the doctor's were able
to stimulate Ethan and we were able to here is voice
for the first time. I was directed to the table that
Ethan was laying on and I was able to pick him up
and walk him over to Heather. It was the most amazing
experience and one we'll never forget.
I was then directed to take Ethan
to the Neonatal Intensive Care Unit(NICU) where he
would be observed. It wasn't clear when Ethan would
have surgery. After a couple of hours, it was apparent
that Ethan was retracting and was working hard to
breathe. He was then intubated so he would not have
to work so hard to breathe.
By October 9th, the doctors and surgeons
were finalizing their plan for surgery on Ethan. They
decided to correct Ethan's heart on October 10th.
Surgery began at 8am and was not complete until 3pm.
That 7 hours seemed to take an eternity!!! Ethan has
been recovering well ever since.
Archive, and Pictures
sections will explain how Ethan has been doing since